Showing posts with label Resources. Show all posts
Showing posts with label Resources. Show all posts

Monday, October 28, 2013

The new 39 week "Full Term" rule.

This post is going to be a little more… intense.
PLEASE read this knowing I am NOT a medical doctor, but I am a mother. I say this with the upper-most respect for those who have no voice, pregnant moms who will undoubtable suffer the same tragedy I have, or worse, will not live through birth. I am going to be as resourceful as possible with my facts, but realize I might get something’s wrong. I encourage comments that have added information, but also those who question my facts. Please read this, knowing that my daughter passed away within a two day time period, but I do believe she died the morning before she was born still. Please comment, knowing these are MY views, MY feelings, and MY Interpretations of the facts.

Some Facts you might like to know:
Neonatal deaths (Deaths that happen with the first 28 days of life) yearly: 19,000
Premature birth accounts for 25% of those deaths.
SIDS: (Death that occurs with no explaination in the first year) 4,000
Stillbirths per year (An infant that passed in uetero after 20 weeks gestation): 26,000
Miscarraiges (An infant that passed before 20 weeks gestation): 600,000

March of Dimes Funding: 219mil (2012)
Stillbirth Research funding: 3mil http://www.firstcandle.org/grieving-families/stillbirth/about-stillbirth/research/

(((DO WE SEE A PROBLEM HERE?!?!)

The new 39 week is Full Term rule, has swept this country silently. The beginnings of it were founded by March Of Dimes, in a deliberate attempt to remove premature deliveries, by the mom’s consent and wishes. The rule, which is now a standard and is being implemented in hospitals everywhere, is bound with twists and binds YOUR Ob’s hands to it. In fact, they can lose their job, license, and reputation if they go against it.
Here is the article March of Dimes has on the reasoning behind the rule. http://www.marchofdimes.com/pregnancy/why-at-least-39-weeks-is-best-for-your-baby.aspx
“Your due date may not be exactly right.
Sometimes it's hard to know just when you got pregnant. Even with an ultrasound, your due date can be off by as much as 2 weeks. If you schedule to induce labor or schedule a cesarean birth (also called a c-section) and your date is off by a week or 2, your baby may be born too early.”
This is an excerpt from their article. What you don’t see, is the flip side to the “off by a week or 2” reasoning.
From 40 weeks, to 42 weeks, the chances of a stillbirth almost DOUBLES, going from 10 in 1000, to 18 in 1000. THAT’S HUGE. Now, imagine if your due date was behind where you actually were by a week… at 39 weeks, you’d really be 40 weeks. 2 weeks, at 39 weeks, you’d be 41 weeks. Let’s say, your OB doesn’t have a slot until your 39.6 weeks. Well… you’re at the end of your 42 week mark, and you don’t have a clue. EDD are NOT accurate enough for 39 weeks to be a legitimized “rule”.
AND there’s even more twists. In an article they wrote in July of this year, they still account premature births as something that happens before 37 weeks… not 39 as they have been broadcasting. A little back and forth, don’t you think?
NOW, being that I have experience with a placental abruption, and that is where I’m going to gravitate… 50% of placental abruptions happen after 37 weeks. I do NOT think it is coincidence that that is also the time when the placenta begins to decrease in it’s function. Yes, at 37 weeks, the placenta isn’t full functioning anymore. (going with the + and – 2 week miss-calculation that your due date COULD be… and depending on how efficient your placenta is, isn’t it reasonable to assume that at 37 weeks your child is full-term due to them not needing as much as they did before?)
OK. So now that we understand the logistics behind what full-term really means.. and how much EDD can be off in each direction, we get back to the ISSUE.
SINCE March of Dimes began their campaign, Stillbirth and Maternal death has risen. RISEN. We are in 2013.. and Maternal death is on the RISE?! Premature births HAVE gone down, but, more full-term babies are losing their fighting chance. More moms are slipping away from extended labors, and un-noticed issues.
How do I know this? There is a group on Facebook I’m in full of moms/grandmas who have lost their grandchildren, children, wives, ect, because of this rule. I’m a part of that group because, I will forever put my daughter’s death on this rule.
Why?
At 37 weeks 4 days I went into the hospital in labor, and was immediately sent home because I refused an IV, although I did ask if I could drink water instead and they said no problem.. Apparently there was a problem with it. At 38w1d, after laboring all night, we went in, my contractions slowed, then rose again, got more intense, then spaced out as they got more intense.. still 3 minutes apart. I was diagnosed with “prodromal labor” and sent home because I was still only 3 cm. My OB wanted to induce me, but couldn’t because of the new 39 week rule. A little back story, my first son was born 5 days early after 32 hours of Pitocin.. I stayed a 3 until 29 hours in, and he was born blue. My second son was born at 37 weeks on the dot, after 4 weeks of TRUE Prodromal labor and taking meds to stop it from progressing me, as I was already 2 ½-3 cm at 34 weeks, after my water broke and I was given pit to counteract the meds. I also have had 5 early losses. You would think, with the labors I’ve had I would have qualified for induction, being I was in labor… but nope. He could’ve lost his job, so home I went. My contractions did slow, but who knows if there were heart rate dips, or any other signs of issues going on.
2 days later, is when Sophia was stillborn. (Read that story HERE)


SO. What does this mean for you?
When you go into labor at 37-38w6d, expect to be sent home. There are even documented cases where doctors have STOPPED labor at this stage for fear of being held liable for a preterm delivery. REMEMBER, this is ALL a game of numbers. If premature deliveries are going down in their hospital, their hospital gets more funding, and better ratings. All of a sudden, March of Dimes looks good, and the big Politicians who endorse them suddenly look like they cured the plague.. all the while us stillbirth moms can’t even get ONE slot on day-time news expressing our concerns with this new rule, or the back stories that it has caused.
Why?
Because no one wants to hear about dead babies. No one wants to see a child die, and no one thinks it can happen to them. You see a premature baby fighting for it’s life, and you think “How precious! I’ll send that baby money to cover it’s hospital bills!” No one see’s a grieving mom and things “I wonder if I can send her money to cover HER hospital bills, I bet that baby was adorable!” All they see is a broken mom who lost her baby… and unfortunately… they wonder what they did to deserve or cause it.
The 39 week rule, is ridiculous. Plus or minus 2 weeks, you have the original full term dates of 37-41 weeks. So really, March of Dimes… what game are you playing?
If you TRULY want to help babies be born safe, let the OB’s that the moms HIRE, do their jobs. I’m sorry Kim Kardashian and all the other celebrities are working their due dates around their jobs, but such is life. You cannot, nor do you have the authority to control it.
If you are interested in reading an article on this very subject by Times magazine, the link is below.
I encourage you to SHARE this post, or this article, and get the word out. Now that it is an accepted rule, I can almost guarantee that stillbirths will rise even more, and more moms will lose their lives. I’m lucky my abruption was concealed, and clotted behind the placenta… if it hadn’t, I wouldn’t be here, and yet still, my perfect daughter who had a perfect heartbeat 2 days before she was born, never had a fighting chance.
http://ideas.time.com/2013/10/22/new-definition-of-full-term-pregnancy-presents-other-problems





Monday, September 16, 2013

Mesothelioma Awareness

The 26th of September it will have been 2 months since Sophia passed, and was born still to this earth.

I will never know what God's purpose of her leaving so soon, but right at this moment, I believe it was for two purposes.

1) To allow us to have MORE children... and one more angel.
2) To be aware of life around us that is silent.

Silent.

A lot of people around you are silent. You ask them, how can I pray for you.. and they shrug... or say something small. It is so rare, too rare, that you find someone who will openly say... "I'm dying. My sister's husband is beating her. I want to die."

We have this persona that to have "pain" afflicting us makes us weak.. but in fact, it makes the enemy stronger. If we can dedicate ourselves to knowing the pain people go through on a daily basis, and commit our lives to helping those who aren't as lucky with days... we can really CHANGE this world.

The 26th Of September is Mesothelioma Awareness day. It is caused by something that isn't banned in the US, and it's cause is also the NUMBER 1 cause of occupation cancer. Heather contacted me directly, hoping I could spread awareness for her.

Heather, I so will. I'm praying for your family daily, and thinking of you often! Heather was told when her daughter Lily was 3 1/2 months old, that she had 15 more months to live. Could you imagine not knowing if you'd see your daughter turn 2? It's been 7 years, and shes dedicated her life to spreading awareness. Please help her spread awareness as well! Share this link, and pray for these men and women and the families affected.

http://www.mesothelioma.com/heather/awareness/#.UjepSsaUTMg

Wednesday, August 14, 2013

It's not my birthday.... but..

Yup. It's NOT my birthday yet. I turn... an unspeakable age on the 29th (**Cough cough**25).
I'm not looking forward to it.
One of my closest friends put it very well... It's just the 4th anniversary of my 21st birthday. I'll stick to that.
BUT. Hubby wanted to get out of the house, so we packed up the boys and headed to a local outdoor mall. We had lunch, spoiled the boys at build a bear, and had a fantastic time walking before we were tired and decided to head home... and then... I wanted to go to best buy ;)
There.. in that store, Hubby found me a Vlogging camera, and a Tripod.
Are you ready for a complete insider look into our daily lives? It's coming :)
Hopefully, we can inspire, spread awareness, help moms grieving, families who are homeschooling/natural parenting, and maybe.. maybe even learn some things from our viewers.

I figure, god already watches us 24/7.. so whats a few people a day :)

First Vlog will be uploaded tonight!
I will be back to update with a new post, and a link! Don't worry! I will still be blogging here, and you might even get a few specials from the Hubs himself... He is awesome!

Friday, August 9, 2013

Wednesday, August 7, 2013

Placental Abruption... Say WHAT? (and a SPOILER!)



So... being the RTIM that I am (comment if you know what that means :P ), I have to research and know EVERYTHING about things... and it's stupid rediculous. Placental Abruptions are RARE. They happen to 1 in 100 pregnancies.. in varying degrees. Apparently, 1 in 10 premature births before 37 weeks, happen because of a placental abruption. You can have a mild placental abruption, and have a perfectly fine baby months later. Or, you can have what I had, and have a sudden complete placental abruption, and have a still birth. Obviously, what I had is rare.. very rare.
Whats funny to me is the March Of Dimes list of "causes"


Got this list HERE:  http://www.marchofdimes.com/pregnancy/placental-abruption.aspx
  • You have an infection in your uterus.
  • Your water breaks before 37 weeks.
  • You had an abruption in a previous pregnancy.
  • You have problems with the uterus or umbilical cord.

NONE of these were associated to my placental abruption. There are a TON of Here is the REALITY I've come to find out from my support group: 

IF You have had a placental abruption, blood clots, multiple early losses and ectopics.. you PROBABLY have a blood clotting disorder during pregnancy.

SAY WHAT??? 

Uhm. Is this PUNKED? DO i really get to meet ashton kutcher?? (thats the dude right?) 
Early losses? Check.
Ectopics? Check ch-check.
Placental abruption and blood clots... CHECK.

Oh snaps... 
Hmm...

SO basically, in 2 weeks when I have my post partum check, I get to sign up for MORE blood draws (I hate needles... :/) and hopefully we can have a sucsessful pregnancy in the future.
Yup.

You heard that right.


We have EVERY intention of making SURE Sophia is a Big Sister <3 ((there is your spoiler!))

I'm pretty certain she'd want that.

So. These blood clotting disorders apparently have some things you can do to prevent loss again.. including taking a baby asprin.. and... GULP... DOUBLE GULP.. daily INJECTIONS. :/ ((DID I mention I hate needles??)) Hubby is all for taking over this procedure if it's needed... His exact words "Sure.. I'll stab you!" as he made a very humorous stabbing motion with the most warrior like noises... Hes a goober. 

I will also be demanding that I'm considered high-risk.. though I'm sure all i have to do is sign my name on something and it will light up and say "This lady sucks at carying babies to term... WATCH HER CLOSELY". AND I will be demanding that no matter "when" March of Dimes thinks my baby is "OK" to come out... 37 weeks ON THE DOT I'm induced, or I will be drinking a bottle of castor oil and admitting myself.. (not really.. but i will go into the ER DAILY.. and throw a fit.... and it WONT be pretty) 

IF i do have this blood clotting disorder... Sophia could very well have SAVED my life... because I could have bled to death with her. I could have had her, and been completley fine.. just to get pregnant again unknowingly to the condition and then suffered an abruption and THEN died... 

IF i don't.. I will be highly surprised.. 

BUT. I hope you enjoyed the spoiler, and stick around! We have lots of things to share in the coming weeks!!
Oh. Tomorrow is my Hubby's Birthday!! Leave him a comment! <3







Las Vegas: Resource and Inspiration.


Since Sophia's birth, it's really been in my heart to help mothers, like me, cope with the loss of an infant. I've found an amazing support group on Facebook, and have found it super healing. I've also had a ton of family/friends and strangers email me with contact info of someone they knew that had gone through something similar (HECK YES For community!) Well.. unfortunately.. not everyone HAS a great community. We are military, and have been here 2 year, so we've gotten pretty established.. I can't IMAGINE being at a new base, and having this kind of thing HIT. Being far away from loved ones is hard enough.

In Las Vegas, a momma who lost an infant started an organization. On October 15th, there is a rememberance day, and vigil. You can find out more info in the link, and more resources here!
http://www.jalensgift.org/

Sunday, August 4, 2013

The Circle Maker




Today, we went to church, and I've spent most of the afternoon cleaning in preperation for my husbands father, step mother, and aunts arival. I'm so excited to see them.. but nervous about how I'm going to deal with seeing them hurting. I know this isn't something I can run away from... but I don't really know how to prepare for it either.. well.. that is until we went to church.

We go to Destination Church. It's an amazing ministry team, and their values are just spot on with our beliefs... we love it there, though we haven't really connected past our group of friends whom I go to bible study on post with. We do hope to connect and get involve soon, but put it off because of the pregnancy and the tenative newborn we were expecting to juggle this month.

They started a new series, called the circle maker. My mind was not on much but Sophia this morning, and I spent most of the sermon trying to focus, but being pulled back to the images of her birth, and of all the things that have been unfolding the past week. Although I was drifting, as I prayed this afternoon, and spoke to god while I was cleaning, I realized... I need to pray MORE. You see, the circle maker is about prayer. A man named Honi, who drew a circle in the sand in the middle of the desert during a drought, and told god he would not move from his cirlce until he answered HIS prayers for his people.. and he did.

I'm realizing that god is asking me to spend more time with him... to pray diligently for the people I love, the things I desire, and for his desires to be mine. My quiet time has become very short lately, and though I study his word, I'm almost certain I haven't been as involved in it as I should be. I'm going to start waking up early, and spending more time with God.

If you would like more information on the book, I will admit I have yet to read it, but will be this month, you can go to the website (also where I borrowed the free image) here.http://www.thecirclemaker.com/

 If you want to hear the sermons from our church, you can go to http://www.destinationwired.com/ and hear exactly what I hear this morning.


Saturday, August 3, 2013

Doula's are the most necisarry thing to pack for the hospital






Come to me, all who labor and are heavy laden, and I will give you rest. Matthew 11:28

I feel like I REALLY need to highlight our amazing doula. Her name is Stephanie Stear, and I'm lucky enough to have her as a friend, as well as my doula for my pregnancy with Sophia.You can view her website here www.livinglovely.org

Stephanie was fabulous. We had a very hectic schedule the last few weeks of pregnancy, but she was very accommodating, and checked in via text at least once a week. When I *thought* I was in labor, or was in pre-labor, she was there giving me advice on how to make things more comfortable, or was on her way to assist. That feeling of being in labor all by myself... completely gone. Yes, my husband deserves a medal for being so amazing and helping as best as he can... but there is something about having another WOMAN, who has been through labor naturally, and who KNOWS how bad it sucks... that just really makes it possible to keep thinking I CAN DO THIS.. Instead of I WANT TO KILL MY HUSBAND.
So, for those of you who is a tad out of the loop on all this "natural" labor business...? Natural labor is that really ridiculous idea some women get, because they really like pain, and hate needles. ((OK... so that’s not really it at all)) Natural labor allows you to connect with your body, and your baby. It allows you to be in control of the pain, instead of letting the pain control you. It is an absolutely beautiful experience. AND. Recovery? Awesome. Day 8 today, and I *think* I'm done with the gross stuff.
Another plus of natural delivery? So my situation was crazy rare, and might have helped speed things up... but the contractions got bad at 9:30... And she was born at 11:08. Quick? VERY. And I will be honest... I used my code word. My contractions at 5 cm, were what they continued to be to 10cm... So I had a very very fast and hard labor due to what had happened with little Soph.
WHY a doula?
*Awesome Support
*You don't feel ALONE
*IF you need assistance, you have someone to help
*She will give you OPTIONS, and the opportunity to have your birth plan whenever acceptable
*Pain management QUEEN. Really... they are amazing.
*If anything goes from bad to worse... you have someone there to comfort you, support you, and take photos.


If you are considering a doula, you can search for one at doulamatch.net. AND if you KNOW you’re having a stillbirth... I highly recommend having a doula specially trained in it. Ours wasn't, but her faith and strength, and our friendship, made it to where she is now looking into getting certified for it. AND she was amazing even without the certification. 

If you've been praying on ways to help moms who go through stillbirth, or who want to just have a natural birth, you can find information on how to become certified as a doula, here.
http://www.childbirthinternational.com/
http://www.dona.org/develop/birth_cert.php

If you really would like to help stillbirth moms cope, but cannot be a doula, consider calling your local hospital, and asking what their needs are in the way of stillbirth moms. I will tell you, that coming home with a box of photos, hair clippings, she hand and foot prints, a blanket, a baby ring to put on a necklace, and cards was really helpful. If they don't do a program like that, but would be open to starting one with assistance, see if you’re church, or friends, would be willing to help fund or donate items for the boxes. The one thing I think about constantly is the moms who give birth to TINY stillborn babies, and don't have anything to dress their precious babies in... So tiny clothes, and premier clothes would definitely be helpful I'm sure, at any hospital.

Most importantly, pray. Pray for doulas, and moms, and hospital staff who face this. Our hospital was in shock, and I was my doula's first client. This isn't something they see on a daily basis, and it changes your heart. Pray that their hearts are opened by it, and that they are surrounded by love and support. Pray that they look into classes for handling these situations, and that they find peace in the thing that occurred. And most importantly, when you hear or meet someone who is a doula, give them a hug. We all turn into raging crazies in the midst of labor, and these ladies do everything in their power to make sure our husbands survive alive, and we get exactly what we want out of it. That. That is amazing work.